携手打击结核病:呼吁将受结核病影响的社区作为研究的重要合作伙伴
N Venkatesan1, L Faust2,3, R Lobo4
1Community Advisory Board, McGill International TB Centre, Montréal, Canada.
PLOS global public health
|April 9, 2025
概括
有意义地让社区参与结核病 (TB) 研究至关重要. 需要更新针对结核病的标准,用于社区动员,培训,公平报酬和包容性语言,以提高研究的相关性和影响.
科学领域:
- 公共卫生 公共卫生
- 传染性疾病 传染性疾病
- 卫生研究 卫生研究 卫生研究
背景情况:
- 结核病 (TB) 与耻辱和社会决定因素有关,影响患者的护理.
- 受结核病影响的社区在他们的护理方面拥有专业知识,但在研究中代表性不足.
- 目前的结核病研究与社区的合作不足以最大限度地发挥潜在的益处.
研究的目的:
- 确定持续阻碍社区参与结核病研究的持续障碍.
- 倡导更新,全面的结核病专用标准,以促进社区参与研究.
- 强调早期,持续和公平的社区参与结核病研究的必要性.
主要方法:
- 该研究回顾了现有的文献和专家观点,以了解社区参与结核病研究.
- 它分析了有效和有意义的参与过程的组成部分.
- 它强调了最佳实践,并提出了新标准的基本要素.
主要成果:
- 参与的主要组成部分包括社区动员,双边培训,公平的报酬和非耻辱化的语言.
- 在确定研究重点之前,早期参与对于相关性至关重要.
- 持续的知识共享和确保参与过程的可持续性至关重要.
结论:
- 有意义的社区参与结核病研究需要具体的,更新的标准.
- 这些标准应涉及动员,培训,公平和早期参与.
- 实施这些标准将提高结核病研究的质量,相关性和影响.
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