优先考虑患者参与患者报告的结果措施 - 一个有希望的方式来改善头痛护理
Lakshini Gunasekera1,2, Jason C Ray3,4,5, Neha Kaul3,6
1Department of Neurosciences, School of Translational Medicine, Monash University, Melbourne, Australia. gayanthika.gunasekera@monash.edu.
The journal of headache and pain
|April 9, 2025
概括
患者报告的头痛结果指标 (PROM) 缺乏患者的意见,这可能会扩大医生和患者对偏头痛治疗有效性的看法之间的差距. 未来的评估应优先考虑患者的价值,以获得更好的护理满意度.
科学领域:
- 神经学 神经学
- 患者报告的研究结果研究结果.
背景情况:
- 最佳的偏头痛管理需要与患者的优先事项保持一致的策略,包括治疗疗效,安全和满意度.
- 传统上,神经病学家强调客观措施,如头痛日减少,并补充患者报告的结果措施 (PROMs) 提供全面的观点.
- 本次审查重点是总结现有的头痛特异性PROM的设计,属性,格式,回忆期和长度.
研究的目的:
- 审查和总结目前可用的特定头痛患者报告的结果指标 (PROM).
- 分析这些问卷的设计,关键属性,响应格式,回忆期和长度.
- 确定有关患者参与的PROM开发中的潜在缺口.
主要方法:
- 在OVID Medline,Embase和Cochrane图书馆进行了全面的文献搜索.
- 搜索策略使用了与偏头痛和头痛疾病相关的关键词,如满意度,疗效,残疾以及各种患者报告的结果指标 (PROM).
- 在初步选和对16024篇文章的全文分析后,包括了44篇文章,分析了20个不同的头痛特异性PROM.
主要成果:
- 该审查确定并分析了20个特定于头痛的患者报告的结果指标 (PROM).
- 一个重要的发现是患者在创建和发展这些头痛PROMs中的参与有限.
- 这种缺乏患者的意见表明神经病学家和患者对治疗疗效的看法之间存在潜在的差异.
结论:
- 显著缺乏患者参与的头痛特异性PROMs的发展.
- 这种缺陷可能会在从临床和患者的角度理解治疗疗效方面造成差距.
- 未来对偏头痛治疗的评估应优先考虑以患者为中心的结果,以提高对护理的满意度.
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