为患有神经发育疾病的年轻成年人开发过渡工具
Yattheesh Thanalingam1, Fiona Catherine Langridge2, Jin Russell2,3
1Faculty of Medical and Health Sciences, The University of Auckland, Auckland, New Zealand.
患有神经发育疾病 (NDC) 的年轻人需要更好的医疗保健过渡支持. 这项研究开发了一种整体的过渡工具,并确定了服务改进,重点关注健康独立性和福祉.
科学领域:
- 医疗保健转型研究 医疗保健转型研究
- 青少年和年轻人的健康.
- 神经发育状况 (NDC) 管理
背景情况:
- 对于患有神经发育疾病 (NDC) 的年轻人来说,从儿科到成人医疗保健的过渡是复杂的.
- 现有的健康,社会和残疾人系统面临着碎片化和赤字.
- 越来越需要引导过渡服务,以促进健康独立.
研究的目的:
- 为年轻成年人开发一个整体的过渡工具与NDC.
- 确定改善过渡服务的关键领域.
- 为了在新西兰阿托亚罗亚达成专家共识.
主要方法:
- 使用了Delphi方法,通过两轮在线问卷.
- 参与了61名小组成员:医疗保健专业人员,教育工作者和护理人员.
- 第一轮:开放式问题;第二轮:建立共识的利克尔特等级.
主要成果:
- 为过渡服务确定了七个主题 (流程,资源,专业人员,治理,文化).
- 转型工具确定了十个主题 (沟通,医疗保健,权利,支持,社区,家庭,文化,心理/精神健康,性健康).
- 达成高度共识:94%的服务项目和100%的工具组件,在许多项目上达成强有力的共识.
结论:
- 为过渡服务提供关键领域提供指导,并为过渡工具提供框架.
- 强调整体领域的重要性:文化,心理/精神健康,权利,家庭和社区联系.
- 代表了迈向全面方法的第一步,为年轻成年人与NDC成功过渡.
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