包括家长在临床伦理学案例咨询咨询
Carolyn Johnston1, Katherine Moore1, Giuliana Fuscaldo2
1Monash Health, Clayton, VIC, Australia.
Journal of paediatrics and child health
|April 10, 2025
概括
家长应该参与儿科伦理咨询,为他们提供分享信息的机会. 需要进一步讨论,以确定父母参与医疗保健决策的最佳方法.
科学领域:
- 医学伦理 医学伦理
- 儿科医疗保健 儿科医疗保健
- 临床决策 临床决策
背景情况:
- 父母在儿科医疗保健决策方面拥有法律和道德权威.
- 在澳大利亚儿科环境中,父母参与伦理案例咨询并不是常规的.
- 父母参与伦理咨询的道德和实际方面需要辩论.
研究的目的:
- 通过质量保证项目评估澳大利亚儿科临床伦理响应小组 (CERG).
- 探索家长参与CERG伦理案例咨询.
- 确定临床伦理支持服务的潜在改进.
主要方法:
- 与CERG成员和推临床医生进行了半结构化采访 (n=12).
- 通过虚拟平台 (Zoom,微软Teams) 探索父母参与伦理案例咨询的观点.
- 在手动编码的采访成绩单上使用了诱导性内容分析.
主要成果:
- 从一个小组中出现了一个共识,即父母应该有机会在道德案例审议中提供意见.
- 输入可以通过书面提交或出席会议提供.
- 父母参与的最佳过程仍未确定.
结论:
- 启动关于父母参与的理由和过程的辩论至关重要.
- 为澳大利亚儿科伦理案例咨询制定最佳实践,需要仔细考虑父母的参与.
- 需要进一步的研究,以建立最优的方法来整合家长的观点.
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