基于移动的个人健康记录的发展,用于儿童注意力缺陷/多动障碍管理:基于行动研究设计的研究协议
Dian Budi Santoso1,2, Martina Sinta Kristanti3, Dian Kesumapramudya Nurputra4
1Department of Health Information and Services, Vocational College, Universitas Gadjah Mada, Special Region of Yogyakarta, Indonesia.
JMIR research protocols
|April 10, 2025
概括
这项研究开发了一个移动个人健康记录 (PHR) 应用程序,以改善儿科注意力缺陷/多动症障碍 (ADHD) 管理. 该应用程序以利益相关者的意见为设计,旨在加强对ADHD儿童的症状监测和护理.
科学领域:
- 数字健康数字健康
- 儿童神经发育障碍 儿童神经发育障碍
- 医疗信息学 医疗信息学
背景情况:
- 注意缺陷/多动障碍 (ADHD) 是一种普遍存在的儿童神经行为疾病.
- 个人健康记录 (PHR) 对于监测ADHD症状改善至关重要.
- 移动技术为可访问的PHR解决方案提供了一个方便的平台.
研究的目的:
- 确定利益相关者在儿童多动症治疗中需要移动PHR的需求.
- 设计,开发,测试和评估基于移动的PHR原型.
- 通过以用户为中心的数字工具,增强儿童ADHD的管理.
主要方法:
- 行动研究在四个阶段进行设计:诊断,规划,行动和评估.
- 利益相关者参与,包括家长,儿科医生,治疗师,心理学家和教师.
- 使用系统可用性量表 (SUS), uMARS,采访和重点小组进行混合方法评估.
主要成果:
- 第1阶段的参与者招聘和需求评估将于2024年12月完成.
- 基于每个研究阶段的发现,移动PHR的代改进.
- 最终结果预计将于2026年中期公布,包括可用性和质量评估.
结论:
- 该研究方案详细介绍了一项改善儿童多动症管理的重要举措.
- 积极的利益相关者参与和行动研究方法是开发过程的核心.
- 预计由此产生的移动PHR将易于使用,有效,并根据儿科ADHD护理需求量身定制.
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