多发性硬化症患者的职业康复干预的主要结果:名义小组技术研究研究
Blanca De Dios Perez1,2, Caolan Senior1, Roshan das Nair3,4,5
1Centre for Rehabilitation and Ageing Research, Queens Medical Centre, University of Nottingham, Nottingham, UK.
概括
多发性硬化症 (MS) 患者的职业康复 (VR) 应该优先考虑雇主支持和症状管理. 这些因素对于改善MS患者的职业保留和工作表现至关重要.
科学领域:
- 康复医学是康复的医学.
- 职业健康 职业健康 职业健康 职业健康
- 神经科学是一个神经科学.
背景情况:
- 职业康复 (VR) 干预旨在改善多发性硬化症 (MS) 患者的独立性和就业成果.
- 由于干预措施的个性化性质和健康/就业结果的多样性,评估VR的有效性具有挑战性.
- 患者的观点对于了解VR对MS工作保留的影响至关重要.
研究的目的:
- 从MS患者的角度识别和优先考虑工作保留VR干预的关键结果.
- 为开发更有效和以患者为中心的MSVR策略提供信息.
主要方法:
- 在10名患有MS的参与者中,使用了名义组技术 (NGT).
- 参与者参与了创意产生,讨论和对VR结果的排名.
- 数据通过微软Teams和Forms收集,并使用专题分析进行分析.
主要成果:
- 确定了九个优先结果,分为四个主题:雇主支持和合作,赋权,症状管理和进展,以及职业福祉和绩效.
- 雇主支持和症状管理成为最关键的结果.
- 患者和公众参与是整个研究设计和执行过程中不可或缺的组成部分.
结论:
- 加强雇主支持和有效的症状管理对于成功保留工作和改善MS患者工作表现至关重要.
- 未来的研究应该专注于为MS的VR干预制定有效和敏感的结果措施.
- 需要探索收集这些确定的结果的可行性,以追踪VR对就业的长期影响.
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