新诊断出克罗恩病的中国患者经历的创伤后生长过程:一项纵向描述性定性研究
Lingxi Chen1, Jinghan Liu1, Yunxian Zhou1
1School of Nursing, Zhejiang Chinese Medical University, 548 Binwen Road, Binjiang District, Hangzhou, 310000, Zhejiang, China.
诊断出克罗恩病可能导致创伤后生长. 这项研究揭示了中国患者从困难到个人成长的四个阶段过程,突出了随着时间的推移改进的自我管理和接受.
科学领域:
- 心理学 心理学 心理学
- 胃肠病学 胃肠病学
- 慢性疾病管理 慢性疾病管理
背景情况:
- 克罗恩氏病是一种慢性疾病,具有显著的负面影响.
- 创伤后生长 (PTG) 是创伤后的潜在积极结果.
- 在中国克罗恩氏病患者中,PTG过程尚不清楚.
研究的目的:
- 纵向探索新诊断的中国克罗恩病患者的创伤后生长过程.
- 在这个人群中确定影响PTG的阶段和因素.
主要方法:
- 纵向研究设计. 纵向研究设计.
- 在诊断后3,6个月和12个月进行的半结构面试.
- 传统内容分析来自16名患者的数据.
主要成果:
- 确定了PTG的四个阶段轨迹:忍受困难,接受疾病,与疾病相处,实现个人成长.
- 与疾病相关的痛苦减少,而随着时间的推移,疾病接受和自我管理能力得到改善.
- 患者从严重的创伤与新生增长过渡到减少创伤和深刻的个人成长,尽管挑战仍然存在.
结论:
- 创伤后生长是一个动态的,多阶段的过程,对于中国的克罗恩病患者.
- 虽然在复发期间接受等挑战仍然存在,但患者表现出显著的心理适应和成长.
- 医疗保健提供者可以通过提供特定阶段的指导来支持PTG,以增强患者的内部资源.
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