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使用链接的初级医疗保健数据重新联系未来研究的同意:来自ATHENA COVID-19研究的结果和一般实践感知

Kim Greaves^1,2, Amanda King¹, Zoltan Bourne³

¹Sunshine Coast University Hospital, Queensland Health, Sunshine Coast, QLD, Australia.

Clinical trials (London, England)

|April 11, 2025

概括

在ATHENA COVID-19研究中,成功招募了患者进行数据提取和未来研究,使用同意重新联系方法. 这种方法在建立研究队列和促进参与长期COVID研究方面被证明是有效的.

科学领域:

公共卫生公共卫生
流行病学流行病学
临床研究临床研究

背景情况:

该ATHENA COVID-19研究旨在在澳大利亚昆士兰州创建一个患者队列,用于未来的临床试验,并调查COVID-19的结果.
该研究的重点是招募具有相关健康信息的患者,并获得数据提取和未来重新联系的同意.

研究的目的:

描述ATHENA COVID-19研究的招聘过程.
评估同意重新联系的方法对队列建设和临床试验招聘的有效性.
评估患者和全科医生愿意分享初级保健数据以进行研究.

主要方法:

在2020年1月至2020年12月期间被诊断出COVID-19的患者被接近同意.
获得了初级医疗保健数据提取和研究研究的未来重新联系的同意.
为了出口患者档案,与一般实践人员进行了联系,并记录了相互作用.
主题分析评估了对数据出口的态度,并报告了数据提取,重新接触和长期COVID研究的同意率.

主要成果:

在拥有可用联系方式的1155名患者中,有85%达成同意决定,69-75%同意数据提取和/或重新联系.
91%的全科医院拥有兼容的电子病历,88%的医院同意参与.
为长期COVID研究重新联系的376名患者同意将他们的详细信息传递,而192人 (53%) 同意参与.

结论:

该研究成功提取了患者同意的初级保健数据,表明患者对参与研究和重新接触的意愿很高.
同意重新联系的方法在招募参与者参加新的研究研究方面被证明是有效的,包括长期COVID研究.
一般做法在很大程度上支持出口可识别的患者数据用于研究,当获得明确同意时.

关键词:

阿提纳COVID-19 亚特兰大一般的做法一般的做法.他们的态度和态度.临床试验临床试验临床试验临床试验临床试验同意同意同意同意同意同意同意同意数据链接数据链接主要护理是一级医疗保健.他们重新联系,重新接触.分享分享分享分享分享分享

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