耻辱对患者生活质量的影响
Chunmei Hu1,2, Yuping Zhao1, Zheng Xiao3
1Department of Neurology, The First Affiliated Hospital of Chongqing Medical University, NO.1 Youyi Rd., Chongqing, Yuzhong District, 400016, China.
Acta epileptologica
|April 11, 2025
概括
几乎一半的患者经历了耻辱感,显著影响了他们的生活质量. 解决耻辱是改善患者福祉的关键.
科学领域:
- 神经学 神经学
- 精神病学是一个精神病学.
- 公共卫生 公共卫生
背景情况:
- 显著影响患者的生活超出了发作.
- 耻辱感是患者 (PWE) 面临的公认的心理社会挑战.
- 了解耻辱和生活质量 (QoL) 之间的联系对于综合护理至关重要.
研究的目的:
- 评估成年PWE中耻辱的流行情况.
- 为了评估成年PWE的QoL.
- 探索PWE中耻辱和QoL之间的关系.
主要方法:
- 一项涉及298名成年PWE的横截面研究.
- 使用了自我报告问卷:的耻辱度表和QOLIE-31.
- 从2020年9月到2021年3月在一个专门的中心收集的数据.
主要成果:
- 49%的PWE报告经历了耻辱感.
- 耻辱感与多个领域的QoL得分明显较低有关.
- 多变量分析发现,耻辱是最重要的负面预测者,与收入和药物负载一起.
结论:
- 耻辱感在PWE中非常普遍,影响了近一半的研究人口.
- 较低的收入,多药和耻辱与PWE中的QoL降低有关.
- 耻辱感对患者的生活质量产生了最严重的负面影响.
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