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将护理与家更紧密地联系起来:对区域运动神经元疾病多学科诊所的评估
Karen Hutchinson1,2,3,4, Georgia Fisher1, Anna Schutz2,5
1Centre for Healthcare Resilience and Implementation Science, Australian Institute of Health Innovation, Macquarie University, Sydney, NSW 2109, Australia.
Healthcare (Basel, Switzerland)
|April 12, 2025
概括
实施一个新的区域运动神经元疾病 (MND) 多学科诊所 (MDC) 改善了患者以人为中心的护理 (PCC) 获取,尽管面临挑战. 关键的促进因素包括员工的专业知识和信任,而障碍则涉及资金和组织问题.
科学领域:
- 神经学 神经学
- 医疗保健管理的管理
- 公共卫生 公共卫生
背景情况:
- 运动神经元疾病 (MND) 的管理需要综合,以人为中心的护理 (PCC).
- 专门的MND多学科诊所 (MDC) 对于最佳护理至关重要.
- 目前在澳大利亚的MND护理往往是分散的和不协调的.
研究的目的:
- 评估参与者与澳大利亚新南威尔士州一个新的区域MND MDC的经验.
- 探索影响MND MDC实施和可持续性的因素.
主要方法:
- 使用与MND (plwMND) 患者,家庭护理人员,医疗保健提供者和社会护理提供者的半结构化访谈进行定性评估.
- 使用理论领域框架和COM-B模型进行演分析,以确定影响因素.
- 感应性主题分析,以确定MND MDC对参与者的感知影响.
主要成果:
- 人们认为MND MDC是适当和可接受的,提供公平的PCC"更接近家园".
- 实施被看作是积极的,确定了当地的服务缺口,并导致了积极的结果.
- 促进者包括员工的专业知识,信任关系和感知到的护理优化;障碍包括薪酬,组织边界和协调困难.
结论:
- 公平地获得区域MND MDCs对于优化对plwMND和家庭的照顾至关重要.
- 克服组织边界,开发本地解决方案和建立伙伴关系是可持续发展的关键.
- 确保持续的财政支持和当地卫生区的参与是长期成功的关键挑战.
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