变化和需求经历了老化的人与脊柱裂和脑水
Lucie Gattaz1, Marie-Christine Ouellet2, Samuel Turcotte3
1Master's degree in health, Université Claude Bernard Lyon 1, Lyon, France; and Department of Occupational Therapy, Université du Québec à Trois-Rivières, Trois-Rivières, Canada.
The Gerontologist
|April 14, 2025
概括
脊柱裂变和/或水头 (SB/H) 患者经历了各种老化变化,并对健康,参与和服务有特殊需求. 了解这些需求可以促进这个不断增长的人口的积极和充实的老龄化.
科学领域:
- 老年学是一门学科.
- 康复医学 康复医学 康复医学
- 公共卫生 公共卫生
背景情况:
- 医学进步增加了脊柱裂和/或水脑 (SB/H) 患者的预期寿命.
- 对于这个人口的老龄化经历和特定需求的理解有限.
- 只有很少的资源可用于支持他们过渡到老年.
研究的目的:
- 描述与SB/H老龄化的人的变化和需求.
- 在这个人口群体中,为支持活跃和充实的老龄化提供资源的开发提供信息.
主要方法:
- 定性描述性研究,涉及对加拿大23名SB/H患者进行半结构面试.
- 使用带导方法的框架方法进行主题内容分析.
- 遵守 COREQ 检查清单,以提供全面的报告.
主要成果:
- 在三个主题中确定了衰老变化:参与 (流动性,休,家庭活动,就业),身体功能和心理功能.
- 参与者报告了各种心理变化,包括增加了性或焦虑.
- 确定了六个关键需求:维护健康,维护参与,环境可访问性,SB/H老龄化教育,医疗保健和社会/社区服务.
结论:
- 患有SB/H的个体的衰老经历是多样化的.
- 了解这些不同的需求对于开发包容性实践至关重要.
- 这些知识支持终身参与,并促进过渡到积极,充实的老龄化.
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