谁来做决定?谁来做决定? 在多样化的家庭结构中探索可靠的复苏的决策动态
Erika R Cheng1, Shelley M Hoffman2, Victoria Schultz2
1Indiana University School of Medicine, Indiana University, Indianapolis, IN, USA. echeng@iu.edu.
概括
母亲经常领导可靠的复苏决策,伴侣起着至关重要的作用. 需要为各种家庭进行包容性指导,以便在这些复杂的选择中进行导航.
科学领域:
- 围产儿医学 围产儿医学
- 家庭研究 家庭研究
- 生物伦理学生物伦理学
背景情况:
- 周期复苏的决定涉及复杂的道德和情感考虑对未来的父母.
- 多样化的家庭结构需要量身定制的决策支持方法.
- 现有的指导可能无法充分满足所有类型的家庭在高风险周产情况的需求.
研究的目的:
- 在可存活的复苏决策过程中,研究不同家庭结构中的冲突解决和决策权力.
- 了解在极度早产的背景下共享决策的动态.
- 确定影响家长参与和支持需求的因素.
主要方法:
- 在怀孕22-26周之间招募了60个父母双 (30个有先前可存活的分娩经验,30个第一次预期)
- 包括不同的家庭结构:异性恋/同性伴侣关系,已婚/未婚夫妇.
- 进行虚拟采访,探讨决策过程,合作伙伴参与和冲突解决策略.
主要成果:
- 四个主要主题出现了:决策中的母亲优先 ("是优先"),关键的合作伙伴参与 ("合作伙伴参与至关重要"),照顾者考虑 ("父母优先考虑谁会照顾孩子"),以及需要情感支持 ("父母想要同情和支持").
- 母亲的决策权力是一个突出的发现.
- 伴侣参与和护理人员的考虑对父母的选择产生了重大影响.
结论:
- 母亲优先考虑和伴侣参与是可存活的复苏决策的核心.
- 由于缺乏对非异性规范家庭的包容性法律和道德指导,存在挑战.
- 需要增强,包容的共享决策模式,考虑家庭结构,法律方面,以及面临临可靠分娩的父母的情感复杂性.
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