设计一个由RE-AIM实施框架支持的电子患者报告结果信息基础设施
Amy C Moreno1, Angela Peek2, Toshiko S Stein2
1Department of Radiation Oncology, The University of Texas MD Anderson Cancer Center, Houston, TX, USA.
medRxiv : the preprint server for health sciences
|April 16, 2025
概括
这项研究开发了一个电子患者报告结果 (ePRO) 系统,与电子健康记录 (EHR) 集成,使用RE-AIM原则. 该系统实现了高度的合规性,提高了临床决策和患者护理.
科学领域:
- 医疗信息学 医疗信息学
- 临床研究 临床研究
- 以患者为中心的护理
背景情况:
- 患者报告结果 (PROs) 为干预和改善生活质量提供了至关重要的数据.
- 实施电子PRO (ePRO) 面临技术,行为和评估障碍.
- 有效的EHR集成ePRO系统需要一个结构化的框架.
研究的目的:
- 构建一个强大的电子健康记录 (EHR) 集成的ePRO信息基础设施.
- 在RE-AIM (实现-有效性-采用-实施-维护) 原则上建立基础设施.
- 为了优化临床效用和实施评估.
主要方法:
- 利用史诗系统的EHR平台开发了MD安德森的症状指数-头部和部模块 (MDASI-HN).
- 建立了RE-AIM指标来设计患者,提供者和促进者信息工具.
- 实施了一个动态的临床实施-评估周期,以持续适应.
主要成果:
- 从3,497名独特的头部和部患者 (2021年1月至2024年7月) 收集了13,156名患者提交的ePRO.
- 实现了82%的12个月持续的ePRO合规率.
- 证明了形成性评估在优化合规性和数据使用方面的重要作用.
结论:
- 使用RE-AIM原则开发了一个全面的基于EHR的ePRO信息基础架构.
- 该框架提供综合的临床数据,以加强决策和潜在的可扩展性.
- 形成性评估对于优化ePRO系统的临床实用性和实施至关重要.
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