为子宫内膜异位症的管理和护理共同开发基于正念和接受的数字干预:一个定性可行性研究
Nina Maindal1, Ulrik Bak Kirk2, Karina Ejgaard Hansen1
1Department of Public Health, Aarhus University, Bartholins Allé 2, Aarhus, 8000, Denmark.
针对子宫内膜异位症自我管理的数字 MY-ENDO (Mind Your ENDOmetriosis) 干预措施受到患者的积极欢迎. 共同开发和支持联系人是其成功的关键.
科学领域:
- 数字健康干预措施 数字健康干预措施
- 基于正念的自我管理
- 子宫内膜异位症患者的经验.
背景情况:
- 子宫内膜异位症显著影响身体,心理和社会福祉.
- 现有的干预措施需要以患者为中心的共同开发,以实现数字化适应.
- 正念和接受策略为子宫内膜异位症自我管理提供了一个框架.
研究的目的:
- 与患有子宫内膜异位症的妇女共同开发 MY-ENDO (Mind Your ENDOmetriosis) 干预措施的数字版本.
- 探索患者对数字自我管理工具的体验和态度.
- 评估共同设计的数字干预的可行性和患者报告的结果.
主要方法:
- 采用现象学方法的定性可行性研究.
- 与七名被诊断患有子宫内膜异位症的妇女进行了半结构面试.
- 根据布劳恩和克拉克的策略,对采访数据进行主题分析.
主要成果:
- "疾病知识"和"疾病管理"的组成部分对参与者的结果至关重要.
- 一个"动机和联盟"的主题显得很重要.
- 参与者强调了疾病特异性定制和患者参与的重要性.
结论:
- 数字MY-ENDO干预措施得到了用户的积极评价.
- 共同开发和针对患者的定制被确定为关键优势.
- 联系人对于激励和维护的重要性表明了临床实施的意义.
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