代理决策内容与恶性脑瘤患者家庭的线索之间的关系:描述性的定性研究
Runa Tokunaga1, Fumiyo Ishikawa2
1Division of Nursing, National Defense Medical College (NDMC), Saitama, Japan.
International journal of nursing sciences
|April 17, 2025
概括
脑瘤患者的家人使用多个线索来治疗和日常护理决策. 护士应该通过评估家庭的需求和提供明确的信息来支持知情的代理决策.
科学领域:
- 在瘤学瘤学.
- 抚慰性护理是一种缓解性护理.
- 生物伦理学生物伦理学
背景情况:
- 代理决策对于患有恶性脑瘤的患者至关重要,因为他们无法自己做出治疗选择.
- 家庭在做出有关复杂医疗治疗和患者日常护理的明智决策方面面临重大挑战.
研究的目的:
- 为了澄清代理决策内容和影响这些决定的线索之间的关系,对于患有恶性脑瘤的患者.
- 确定家庭在制定治疗政策和日常护理决策时使用的具体线索.
主要方法:
- 与患有恶性脑瘤的患者的七名家庭成员进行了半结构面试.
- 数据是从2022年6月到8月收集的.
- 专题分析被用来探索决策内容和影响线索.
主要成果:
- 治疗政策决策涉及实施,中断,终止和终身护理,受医生的建议,疾病信息,感知到的威胁,患者线索和家庭价值观的影响.
- 日常护理决策包括饮食,流动性,卫生,康复,工作和生活安排,以患者的生活偏好,日常能力,家庭价值观和专业建议为指导.
- 治疗政策的关键线索包括医疗专业的指导方针,而日常护理决策的指导是日常生活中微妙的患者线索.
结论:
- 医疗指南是治疗政策决策的关键,而细微的患者线索指导日常护理决策.
- 大脑瘤患者的家属在不确定性下使用多个线索,强调需要支持性干预.
- 护士通过评估家庭情况并提供适当的线索,在促进知情的代理决策方面发挥着至关重要的作用.
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