开发和评估患者报告的结果工具,用于性别确认护理
Manraj N Kaur1, Charlene Rae2, Shane D Morrison3
1Patient-Reported Outcomes and Values, & Experience Center (PROVE), Brigham and Women's Hospital, Harvard Medical School, Boston, Massachusetts.
JAMA network open
|April 18, 2025
概括
GENDER-Q,一种新的患者报告的结果指标,在一项针对跨性别和性别多样性成年人的大型国际研究中得到了验证,证明了性别肯定护理结果的可靠性和有效性.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 心理测量 心理测量 心理测量
- 跨性别者健康 跨性别者健康
背景情况:
- 经验证的患者报告结果指标 (PROM) 对于评估性别肯定护理至关重要.
- 现有的措施可能无法充分捕捉跨性别和性别多样性 (TGD) 个体的经验.
研究的目的:
- 实地测试GENDER-Q,一种用于性别肯定护理的新型PROM.
- 评估GENDER-Q在TGD成年人的大型国际样本中的心理特征.
主要方法:
- 一项国际横截面研究,涉及5497名寻求或接受性别肯定护理的TGD成年人.
- 数据通过多种语言的在线REDCap调查收集.
- 拉什测量理论 (RMT) 分析,测试复试可靠性和构造有效性被用于评估GENDER-Q.
主要成果:
- GENDER-Q实地测试包括5497名TGD成年人,他们有不同的性别认同和寻求的性别肯定护理类型.
- 经过RMT分析,得到了54个单维尺度和2个检查清单,涵盖了护理的各个方面.
- GENDER-Q表现出良好的测试重复测试可靠性 (ICC>0.70) 并支持构造有效性,得分与自我报告结果相关.
结论:
- GENDER-Q是评估患者报告的性别确认护理结果的可靠和有效工具.
- 这种经过验证的PROM可以从患者的角度收集和比较基于证据的结果数据.
- GENDER-Q的国际验证支持其在各种TGD群体中的使用.
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