肉瘤患者的经验和需求:一个定性元合成
1School of Nursing, The Hong Kong Polytechnic University, Hong Kong Special Administrative Region of China; JC STEM Lab of Digital Oncology Care Enhancement (DOCE), The Hong Kong Jockey Club Charities Trust, Hong Kong Special Administrative Region of China.
概括
肉瘤患者经历了重大的身体,情感和社会挑战,影响了他们的福祉. 解决这些问题需要一种超越个人健康管理的整体方法,以获得更好的患者结果.
科学领域:
- 在瘤学瘤学.
- 定性研究是指质量研究.
- 患者体验 患者体验
背景情况:
- 肉瘤是一种罕见的癌症,具有复杂的治疗和生存需求.
- 了解患者的体验对于改善护理至关重要.
- 定性研究为患者的旅程提供了深刻的见解.
研究的目的:
- 综合有关瘤患者经验和需求的定性证据.
- 确定患者面临的多维挑战.
- 为整体患者管理策略提供信息.
主要方法:
- 符合 ENTREQ 准则的定性元合成.
- 系统搜索七个电子数据库.
- 对27项包括研究的专题分析.
主要成果:
- 患者面临着自我感知的健康挑战 (身体,情绪).
- 社会互动呈现出与人际关系和医疗保健提供者的混合体验.
- 社会障碍包括就业,经济负担和耻辱.
结论:
- 瘤影响患者的不仅仅是身体健康,影响关系和社会福祉.
- 对于这种罕见疾病来说,整体管理是必不可少的.
- 需要涉及医疗保健,社区和政策的多学科方法.
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