慢性疾病患者对简单语言摘要的看法:定性分析
Karen Maree Gainey1, Kirsten McCaffery1, Danielle Muscat1
1Sydney Health Literacy Lab, Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Corner of Parramatta and City Roads, Camperdown, NSW 2006, Australia.
Health promotion international
|April 19, 2025
概括
简单语言摘要 (PLS) 为慢性疾病提供可靠的健康信息. 与患者共同设计PLS可以确保内容是可操作的,可访问的,并满足更好的健康素养的各种需求.
科学领域:
- 卫生沟通健康沟通
- 患者的参与度 患者的参与度
- 信息科学 信息科学
背景情况:
- 患有慢性疾病的个人寻求各种信息来源.
- 在线健康信息的质量各不相同;科学文章缺乏普遍的可访问性.
- 简单的语言摘要 (PLS) 提供了可访问的健康信息的潜在解决方案.
研究的目的:
- 调查患有慢性疾病的消费者寻求健康信息的行为.
- 了解患者对PLS内容,设计,结构和标签的优先考虑.
- 探索共同设计的PLS如何改善健康信息的可访问性.
主要方法:
- 对来自6个国家的19名参与者进行了半结构化的焦点小组和采访.
- 所有参与者都患有慢性疾病.
- 采用反射的主题分析来确定关键主题.
主要成果:
- 四个主题出现了:信息获取挑战,缺乏患者代表,需要有意义的共同设计,以及对PLS的创造性方法.
- 参与者强调了PLS标签和可操作内容的重要性.
- 建议包括不同的阅读水平,以满足不同受众的需求.
结论:
- 与消费者投入共同设计PLS可以创造更有效的资源.
- PLS应专注于可操作,可访问和详细但又尊重的内容.
- 精心设计的PLS可以提高那些患有慢性疾病的人可靠的健康信息的实用性.
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