患有脊柱裂的成年人的医院经历和医疗创伤性压力
Ellen Fremion1,2, Nora Deibler3, Juliana Abel3
1Department of Internal Medicine, Baylor College of Medicine, Houston, TX, USA.
Journal of pediatric rehabilitation medicine
|April 21, 2025
概括
患有脊柱裂变 (SB) 的成年人经常在住院期间经历医疗创伤性压力 (MTS),与焦虑,抑郁和PTSD有关. 改善沟通和支持可以增强他们的医疗保健经验.
科学领域:
- 医学社会学 医学社会学
- 临床心理学 临床心理学
- 康复医学 康复医学 康复医学
背景情况:
- 脊柱裂 (SB) 的成年人经常面临复杂的医疗保健需求.
- 医院和急诊室 (ED) 的经验可以显著影响患者的福祉.
- 医疗创伤性压力 (MTS) 是慢性疾病患者日益关注的问题.
研究的目的:
- 检查患有脊柱裂变 (SB) 的成年人的医院和ED经验.
- 调查MTS与参与者特征,焦虑,抑郁,PTSD症状和弹性之间的关联.
- 确定影响SB成年人医疗体验的因素.
主要方法:
- 从医疗家庭诊所招募25名患有SB的成年人,他们最近曾在医院或ED遇到过.
- 结构化面试和验证问卷以评估MTS,情绪健康和弹性.
- 对面试答案进行定性主题分析,对问卷进行定量评分.
主要成果:
- 大多数参与者报告了MTS的症状.
- 增加的MTS症状集群与更高水平的抑郁,焦虑和PTSD症状相关.
- 较高的弹性得分显示出一种趋势,即MTS症状集群减少.
- 确定的主要主题是负面的医院环境,与SB相关的条件问题和积极的支持.
结论:
- 虽然需要进行更大规模的研究,但研究结果强调了改善SB成年人的医疗保健的机会.
- 干预措施应侧重于加强沟通,解决SB的具体问题,并促进患者的自我倡导和弹性.
- 医疗保健提供者应该询问潜在的创伤性医疗经历,并培养支持性环境.
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