在炎症性肠病患者中影响决策偏好的因素:中国的一项跨部门研究
Yizhen Wang1,2, Shijing Zhang1,2, Wenjuan Fang2
1School of Nursing, Anhui Medical University, Hefei, Anhui, People's Republic of China.
Patient preference and adherence
|April 21, 2025
概括
患有炎症性肠道疾病的患者希望共享决策,但由于持续存在的困境,实际参与往往不足. 医疗保健提供者应定制策略,以加强患者参与治疗选择.
科学领域:
- 胃肠病学 胃肠病学
- 患者为中心的护理
- 健康研究成果研究结果
背景情况:
- 炎症性肠病 (IBD) 管理需要患者积极参与.
- 了解患者在决策中的偏好对于有效的护理至关重要.
- 预期和实际患者参与之间的差异可能会影响治疗的坚持和满意度.
研究的目的:
- 评估炎症性肠病 (IBD) 患者目前的决策角色.
- 为了确定预期和实际患者参与治疗决策之间的差异.
- 探索影响IBD患者实际决策参与的因素.
主要方法:
- 一项涉及中国安274名炎症性肠病 (IBD) 患者的横截面研究.
- 使用了调查问卷,包括控制偏好量表和健康素养量表.
- 分析了预期与实际决策角色和影响因素的数据.
主要成果:
- 很大一部分IBD患者 (52.19%) 喜欢共享决策,实际共享参与率为53.65%.
- 在预期和实际的决策角色之间发现了适度的一致性 (69.34%的合规性,kappa=0.498).
- 健康素养,婚姻状况,教育,收入,工作状况和疾病特征影响了实际参与.
结论:
- 肠胃炎症患者表现出强烈的决策共享意愿,并具有足够的健康素养.
- 患者的期望与他们实际参与决策之间仍然存在着显著的差距.
- 需要个性化策略来解决决策困境,并加强患者参与IBD护理.
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