我的指南长期COVID:为长期COVID患者提供在线自我管理工具
Hiten Naik1,2, Kyla Pongratz3, Michelle Malbeuf4
1Post-COVID-19 Interdisciplinary Clinical Care Network, British Columbia, Canada.
Internet interventions
|April 21, 2025
概括
一个新的在线工具MyGuide Long COVID为长期COVID患者提供了个性化的自我管理资源. 它与患者共同开发,为有效管理慢性疾病症状提供了可访问的,定制的支持.
科学领域:
- 数字健康数字健康
- 慢性疾病管理 慢性疾病管理
- 患者的参与度 患者的参与度
背景情况:
- 长期COVID为寻求可靠的自我管理资源的患者带来了挑战.
- 有效的自我管理策略对于经历长期COVID症状的人来说至关重要.
- 现有的资源可能无法充分适应个体患者的需求.
研究的目的:
- 为长期COVID自我管理开发一个以患者为中心,可访问和可定制的在线工具.
- 为长期COVID患者提供可靠和可操作的自我管理信息的需求.
- 创建一个数字平台,支持个人管理他们的慢性疾病.
主要方法:
- "MyGuide长期COVID"在线工具是由加拿大不列颠哥伦比亚省的临床医生和患者合作伙伴共同开发的.
- 用户回答与症状相关的问题,以获得精心策划的自我管理资源.
- 自2023年8月推出以来,网站活动一直使用谷歌分析进行监控.
主要成果:
- 我的指南长期COVID在第一年记录了超过52578次页面浏览和8570名新用户.
- 主要的访问方式是通过计算机 (56.3%),BC省温哥华是代表性最强的城市.
- 热门话题包括后炼不适和关于长期COVID的一般信息.
结论:
- 慢性疾病自我管理的在线工具可以与患者合作伙伴一起成功开发.
- 网络分析为跟踪数字健康工具的参与提供了有价值的数据.
- 共同开发和以用户为中心的设计是有效的患者支持平台的关键.
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