开发和评估中风研究的公共患者参与小组
Siobhán O'Reilly1,2, Aoife Whiston1, Aine Cronin3
1School of Allied Health, University of Limerick, Limerick, County Limerick, Ireland.
HRB open research
|April 21, 2025
概括
在中风康复研究中制定公众和患者参与 (PPI) 专家小组至关重要. 本研究探讨了利益相关者的经验,确定了在中风研究中有效的PPI的障碍和推动者.
科学领域:
- 康复医学 康复医学 康复医学
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与 (PPI)
背景情况:
- 公众和患者参与 (PPI) 在中风研究中至关重要,以使研究与中风幸存者的需求保持一致.
- 诸如研究地点和时间承诺等因素可以影响PPI的有效性.
- 脑卒中发病率的上升导致幸存者面临重大的身体,认知和情感挑战.
研究的目的:
- 描述PPI小组和医疗保健专业小组对中风康复研究的发展.
- 探索PPI小组成员关于他们参与研究过程的观点.
主要方法:
- 形成一个利益相关者小组 (最多20名成员:中风幸存者,公众,医疗保健专业人员).
- 通过使用雪球技术的务实有目的抽样进行招聘.
- 根据INVOLVE框架指导的四次小组会议,成员担任共同研究员.
- 半结构化的焦点小组用于对参与者的观点进行定性数据收集.
- 使用布劳恩和克拉克的反射主题分析进行数据分析.
主要成果:
- 该研究将产生主题和子主题,详细介绍参与者对中风康复研究中PPI的经验和意见.
- 了解参与PPI的利益相关者遇到的促进者和障碍.
结论:
- 公众和患者的参与是中风研究的组成部分,为研究过程提供了有价值的见解.
- 这项定性研究将揭示影响中风康复研究成功PPI的关键因素.
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