一种用于临床实践和研究的新型以儿童为中心的核心息护理结果测量方法:来自跨国验证研究的发现
Eve Namisango1,2, Fliss E M Murtagh3,4, Katherine Bristowe3
1African Palliative Care Association, Plot 850 Dr Gibbons Road, Kampala, Uganda. eve.namisango@africanpalliativecare.org.
Health and quality of life outcomes
|April 21, 2025
概括
儿童息护理结果尺度 (C-POS) 显示了用于评估儿童息护理需求的良好的心理测量特性. 这种经过验证的工具可以在研究和临床实践中改善以人为中心的护理.
科学领域:
- 儿科抚慰性护理 儿科抚慰性护理
- 健康结果 测量 测量 测量
- 心理测量 心理测量 心理测量
背景情况:
- 有效的结果测量对于以人为中心的护理,质量改进和儿科息护理 (PPC) 研究至关重要.
- 缺乏验证的结果措施阻碍了加强为患有生命限制或危及生命的儿童提供PPC服务的努力.
- 患有生命限制疾病的儿童和青少年有复杂的需求和高的服务利用率,强调了需要适当的评估工具.
研究的目的:
- 评估儿童息护理结果尺度 (C-POS) 的有效性,可靠性,测量不变性,响应性,可接受性和可解释性.
- 建立C-POS作为评估儿科息护理结果的强大工具.
主要方法:
- 在肯尼亚,乌干达和南非招募了434名 (0-17岁) 患有限制生命/威胁生命的儿童及其家属.
- 在四个时间点进行C-POS,以评估构造的有效性,可靠性 (内部一致性,测试重试),响应性,可接受性和可解释性.
- 利用统计分析,包括因子分析,可靠性系数 (欧米茄,卡帕) 和对不同项目运行的差异性项目的评估.
主要成果:
- C-POS证明了面部,内容和构造的有效性,证实了双因素结构 (儿童和家庭子尺度).
- 内部一致性是中度的 (欧米茄0.67-0.73),测试重复测试可靠性是可以接受的 (卡帕0.35-0.71),大多数项目都显示出响应性.
- 完成时间中位数为10分钟,缺少的数据最小,表明可接受性良好. 在自我报告和代理版本中确立了最小重要的差异.
结论:
- 儿童息护理结果表 (C-POS) 显示出良好的心理测量特性,支持其在儿科息护理中的使用.
- 确定了需要改进的领域,包括可能的项目删除和解决未来版本的概念差距.
- 在研究和临床环境中,C-POS具有显著的潜力,可以加强以人为中心的儿科息护理的评估和改进.
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