在自闭症研究中评估社会人口学问题的更细致的选择
Rosalind Usher1, Kristn Currans2, Kate Wallis1,3
1Division of Developmental and Behavioral Pediatrics, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.
概括
增强的人口调查是可行的,对家庭来说是可以接受的,改善了研究中的代表性. 这项研究改进了针对种族,族裔,性别,性别和社会经济地位的调查选项.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 社会学 社会学 社会学
- 人口统计学 人口统计学
背景情况:
- 人口调查对于了解研究参与者群体至关重要.
- 现有的调查往往缺乏关于种族,种族,性别,性别和社会经济地位的细节选择,这可能会限制代表性.
- 自闭症护理网络 (ACNet) 试图提高其人口调查的包容性.
研究的目的:
- 评估更新的人口调查的可行性和可接受性,并提供更详细的响应选项.
- 评估增强人口统计数据的有用性,以确定代表性差距,提高研究中的概括性.
主要方法:
- 用一种代方法来更新人口调查,并结合了定性和定量反.
- 在两个学术儿科三级保健中心,与家庭 (有和没有自闭症) 进行了试点测试.
- 有目的的抽样丰富了对少数民族,种族或性别的参与者的招聘.
主要成果:
- 更新的调查包括扩大了种族,种族,性别,性别和语言的选项.
- 在ACNet的85个家庭和ACNet以外的242个家庭参与了.
- 41%的受访者认同非白人或多种族群体.
- 99%的人认为更新的表格与原始表格相同或更好; 91%的人认为它是可以接受的,97%的人认为它是可行的.
结论:
- 尽管人们担心受访者负担,但细粒度人口调查选项显示出高可行性和可接受性.
- 这种代方法可以被研究人员适应,以创建特定的环境,包容的人口形式.
- 增强的人口统计数据对于识别和解决代表性差距至关重要,从而提高研究概括性.
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