一个癌症中心的患者报告结果计划规模
Fernanda C G Polubriaginof1, Allison Lipitz-Snyderman1, Susan Chimonas1
1Digital Informatics and Technology Solutions, Memorial Sloan Kettering Cancer Center, New York, NY.
JCO clinical cancer informatics
|April 22, 2025
概括
在癌症中心实施患者报告结果 (PRO) 计划是可行的. 成功采用PRO的关键因素包括强有力的治理,专注于患者体验和高效的临床医生工作流集成.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 以患者为中心的护理
背景情况:
- 患者报告的结果 (PROs) 提高了患者的参与度,但面临着采用挑战.
- 在医疗保健中扩展PRO需要强大的基础设施和流程.
研究的目的:
- 描述一个全面的PRO程序的设计,开发和大规模采用.
- 概述一个模型,将PRO纳入癌症中心的标准护理和研究.
主要方法:
- 收集了PRO程序开发的利益相关者的要求.
- 建立了治理,内容管理,患者参与工具和临床工作流集成.
- 利用描述性统计数据来评估2016-2023年期间的计划利用情况.
主要成果:
- 开发了189个独特的问卷 (101个护理标准,70个研究,18个质量改进).
- 实现了73%的患者完成率 (432,497名患者中有314,685名).
- 报告了52%的总体问卷填写率 (5,948,464中的3,098,574) 平均填写时间为2分钟.
结论:
- 在癌症治疗中大规模采用PRO是可以实现的.
- 成功取决于治理,患者体验,临床医生工作流集成和管理复杂的交付标准.
- 传播这些原则可以释放PRO在医疗保健中的全部潜力.
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