"我需要更具体的东西吗? ":自闭症参与者在以语言为重点的研究研究中的经验
Kelly L Coburn1,2, Emma P Shipley2
1Department of Speech-Language Pathology & Audiology, Towson University, MD.
American journal of speech-language pathology
|April 23, 2025
概括
研究人员应向自闭症成年人提供关于参与研究的明确信息. 了解他们的经验可以改善未来的语言研究,提高自闭症患者的可访问性和参与度.
科学领域:
- 神经科学是一个神经科学.
- 心理学 心理学 心理学
- 语言学的语言学.
背景情况:
- 自闭症倡导者强调需要进行研究,以纳入自闭症个体的经验.
- 以前的语言研究还没有完全捕捉到自闭症参与者的主观经验.
研究的目的:
- 调查自闭症成年人在参与语言研究研究期间的经历.
- 确定为自闭症患者设计更容易获得和肯定研究的策略.
主要方法:
- 从更大的口头叙事研究中对采访成绩单进行二次主题分析.
- 分析的重点是参与者关于他们的研究经验的评论,超出了结构化的提示.
- 主题分析确定了与处理,态度,意识和自我反思相关的关键主题.
主要成果:
- 出现了四个主要主题:处理策略,对研究的态度,对研究过程的认识和自我反思的评论.
- 参与者的主观经验和对参与研究的看法得到了阐明.
- 确定的主题为优化自闭症患者的研究设计提供了见解.
结论:
- 对于研究人员和从业人员来说,这些发现对于在口语任务上与自闭症患者合作的研究人员和从业人员至关重要.
- 分享有关研究期望的详细信息 (之前,期间,之后) 提高了可访问性.
- 实施这些策略可以为自闭症患者带来更具包容性和支持性的研究环境.
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