肌缩性侧面硬化症患者及其护理人员的日常沟通经验:对新型语音干预的含义
Annie J Olmstead1, Jimin Lee1, Sophia Skrzat1
1Department of Communication Sciences and Disorders, The Pennsylvania State University, University Park, Pennsylvania, USA.
Muscle & nerve
|April 25, 2025
概括
肌缩侧面硬化症 (ALS) 患者及其护理人员希望进行沟通干预. 两组人都对语言治疗感兴趣,包括患有ALS的人 (PALS) 和他们的沟通伙伴 (CPALS).
科学领域:
- 神经学 神经学
- 语音语言病理学 语言病理学
- 通信科学 通信科学
背景情况:
- 语音可理解性下降在与肌缩侧面硬化症 (ALS) 相关的脱节症中很常见.
- 传统的语音干预可能无法完全抵消逐渐下降的沟通能力.
- 另一种方法侧重于调整沟通伙伴的语音感知,以适应患有ALS (PALS) 的人.
研究的目的:
- 评估PALS及其护理人员 (CPALS) 之间对沟通合作伙伴专注的语音干预的需求和热情.
- 为开发和实施交互式语音可理解性支持奠定基础.
主要方法:
- PALS和CPALS填写了新的问卷,评估了沟通经验和干预偏好.
- 数据收集包括定量和定性测量.
- 专注于沟通伙伴理解PALS语音能力的变化.
主要成果:
- 尽管存在可理解性挑战,PALS和CPALS报告说,语音是主要的沟通方法.
- 语音可理解性根据沟通伙伴而异,频繁的合作伙伴表现出更好的理解.
- 无论是PALS还是CPALS都对涉及双方的演讲干预表示了极大的兴趣.
结论:
- 对于针对可理解性的交互式语音干预,存在着明确的需求和社区愿望.
- 研究结果支持临床方法,包括在治疗中与PALS一起的沟通伙伴.
- 社区非常希望参与PALS和CPALS的干预.
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