"我在我的经历中并不孤单":新诊断的自闭症成年人如何与神经多样性肯定的"欢迎包"互动
Chris Edwards1,2, Abigail Ma Love1, Ru Ying Cai1,3,4
1Autism Spectrum Australia (Aspect), Australia.
Autism : the international journal of research and practice
|April 25, 2025
概括
新确诊的自闭症成年人发现神经多样性确认的"欢迎包"是有效的. 虽然对身份导航有帮助,但参与者希望在诊断后得到更多的同行支持和实践指导.
科学领域:
- 神经多样性研究研究的神经多样性研究.
- 成年自闭症研究研究
- 心理支持系统 心理支持系统
背景情况:
- 成年自闭症诊断具有变革性,但往往缺乏足够的诊断后支持.
- 新确诊的自闭症成年人在身份导航和获取肯定资源方面面临挑战.
研究的目的:
- 探索一个自我引导,神经多样性肯定资源"欢迎包"对新诊断的自闭症成年人的影响.
- 了解该资源如何帮助身份探索和诊断后调整.
主要方法:
- 澳大利亚11名自闭症成年人的定性研究,在6个月内诊断出.
- 参与者使用了"欢迎包"为期2个月,随后进行了半结构化面试.
- 使用反思性的专题分析来确定关键主题.
主要成果:
- 四个主题出现了:通过社区/代表的归属感",欢迎包"作为自我理解工具,情感反思 (缓解/悲伤),以及自我倡导的挑战.
- 参与者认为"欢迎包"是有效的,但强调了有结构的同行支持和实际指导的需求.
结论:
- 像"欢迎包"这样的自我指导资源是诊断后支持的宝贵组成部分.
- 将这些资源整合到更广泛的支持系统中,对于新确诊的自闭症成年人来说至关重要.
- 及时,可访问和肯定支持对于自闭症成年人导航他们的身份至关重要.
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