父母对极度早产儿童发育的看法
Katharine Press Callahan1, Ashley E Martin2, Arzu Cetin2
1Division of Neonatology, The Children's Hospital of Philadelphia, Philadelphia, PA; Department of Medical Ethics and Health Policy, University of Pennsylvania, Philadelphia, PA.
The Journal of pediatrics
|April 25, 2025
概括
父母 父母 父母 父母 父母 父母 父母
科学领域:
- 新生儿护理 新生儿护理
- 儿童发展 儿童发展
- 父母对孩子的看法
背景情况:
- 新生儿重症监护室 (NICU) 的毕业生经常面临发展方面的挑战.
- 了解父母对NICU后儿童发展的看法至关重要.
研究的目的:
- 为了调查父母如何评估他们的孩子在NICU退院后的发展.
- 探索父母和医生发展评估之间的差异.
主要方法:
- 与23名家长进行了半结构面试.
- 探索发育信息来源和整合方法.
主要成果:
- 家长们将NICU退院视为一个过渡,重点是进展,而不是退院后的比较.
- 父母更喜欢积极的,可操作的发展信息.
- 父母的评估受到应对能力和家庭福祉的影响.
结论:
- 调整医疗和家长的评估可以更好地支持家庭.
- 整合父母的观点可以为开发有意义的发育指标提供信息.
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