平衡隐私,信任和公平:患者对物质使用障碍的看法数据共享
Mengyi Wei1, Michael Todd2, Aimee N C Campbell3
1College of Health Solutions, Arizona State University, Phoenix, AZ 85004, USA.
概括
患有物质使用障碍 (SUD) 的患者更愿意分享健康数据,当他们信任提供者并对护理感到满意时. 解决耻辱问题对于公平的SUD数据共享和改善健康结果至关重要.
科学领域:
- 公共卫生 公共卫生
- 医疗信息学 医疗信息学
- 社会科学 社会科学 社会科学
背景情况:
- 分享物质使用障碍 (SUD) 数据对于公平的医疗保健和改善结果至关重要,特别是对于边缘化群体.
- 隐私问题,耻辱和监管合规性往往阻碍了有效的SUD数据共享.
- 这项研究调查了患者的偏好和影响SUD医疗记录共享的因素,重点关注社会文化和系统因素.
研究的目的:
- 探索患者愿意分享SUD数据的意愿.
- 确定影响数据共享决策的关键因素,包括耻辱,信任和护理满意度.
- 了解患者在不同场景中对数据共享的偏好.
主要方法:
- 在亚利桑那州四家社区诊所对357名成年患者进行了横截面电子调查.
- 该调查评估了社会人口结构,耻辱经历,医疗保健提供者的信任,护理满意度和愿意分享SUD数据.
- 描述性统计,皮尔森相关性和单向ANOVA被用于数据分析.
主要成果:
- SUD病史,诊断和治疗细节被确定为高度敏感的信息.
- 增加的耻辱与更高的数据敏感性和更低的共享意愿相关,特别是与外部提供商 (p < 0.001).
- 对提供者的信任和更高的护理满意度与更愿意共享数据 (p < 0.01) 相关,更愿意在紧急情况下共享或直接治疗而不是用于行政或研究目的 (p < 0.001).
结论:
- 解决耻辱和培养信任对于公平的SUD数据共享至关重要.
- 政策应该优先考虑对敏感健康信息的患者控制,并确保文化上有能力的护理.
- 提高患者对数据使用的信心可以促进健康信息交换和改善SUD护理.
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