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对抗合成酶综合征的共识命名和缩写:一个IMACS项目
Anushka Aggarwal1, Tanya Chandra2, Shiri Keret3
1Department of Rheumatology, Indraprastha Apollo Hospital, New Delhi, India.
反合成酶综合征 (ASS) 的标准化术语是通过国际专家共识建立的. 该研究建议采用"抗合成酶综合征"和简称ASyS,以实现一致的研究和临床使用.
科学领域:
- 类风湿病学 类风湿病学
- 临床免疫学临床免疫学
- 医学术语 医学术语 医学术语
背景情况:
- 对抗合成酶综合征 (ASS) 的不一致术语阻碍了研究和临床实践.
- 需要一个全球公认的ASS命名和缩写标准.
研究的目的:
- 达成关于抗合成酶综合征 (ASS) 的标准化名称和缩写的国际共识.
- 提高关于ASS的科学文献和临床沟通的一致性.
主要方法:
- 一个定性项目,包括文献综述和初步调查.
- 两轮的德尔菲调查与全球肌肉炎专家和患者代表.
- 名义组技术 (NGT) 是指导委员会用来最终达成共识的技术.
主要成果:
- 超过241名专家在多个大陆和专业领域参与了.
- 在"抗合成酶综合征"作为首选术语达成共识 (100%的投票).
- 达成共识,ASyS作为首选的缩写 (93.1%的选票),并对ASS表示不满.
结论:
- 建议在研究和临床实践中采用"抗合成酶综合征"和ASyS.
- 标准化将提高科学文献的一致性和清晰度.
- 这种共识旨在减少模两可,并改善与ASS相关的患者护理.
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