了解被诊断为血液癌症的年轻成年人的治疗后自我管理学习需求:一种定性研究
Benedicta Hartono1, Karine Bilodeau2
1Faculty of Nursing, Université de Montréal, Montréal, H3T 1A8, Québec, Canada.
概括
患有血液癌症的年轻人需要不仅仅是信息的支持,还需要自我管理. 学习管理幸存者包括个人成长和与医疗保健提供者和支持网络的合作.
科学领域:
- 在瘤学瘤学.
- 血液学 血液学 血液学
- 精神瘤学 精神瘤学
- 癌症的生存率 癌症的生存率
背景情况:
- 被诊断出患有血液癌症的年轻人 (YA) 在生存期间面临着独特的挑战.
- 积极参与自我管理对于成功的癌症幸存者至关重要.
- 了解YA治疗后的学习需求对于支持性护理至关重要.
研究的目的:
- 识别和理解患有血液癌症的年轻成年人治疗后的自我管理学习需求.
- 探索年轻成年人关于他们对活跃幸存者的学习要求的观点.
- 为年轻成年癌症幸存者制定有针对性的支持策略提供信息.
主要方法:
- 解释性-描述性定性研究.
- 与8名年轻成年人 (18-29岁) 进行半结构化个人访谈,诊断出白血病或淋巴瘤,治疗后至少一年.
- 采访数据的代内容分析.
主要成果:
- 学习需求出现在生活过渡期间或在治疗后感到孤立时.
- 影响自我管理学习需求的因素包括个人特征,社会支持和患者教育质量.
- 年轻人有动力去获得态度 (自主,责任),知识 (身体/心理社会挑战,残疾人权利) 和技能 (自我评估,宣传).
结论:
- 年轻人需要的不仅仅是信息,以自信地自我管理治疗后.
- 自主管理学习是一个由内在动机驱动的变革过程.
- 通过年轻人,他们的社交网络和医疗保健提供者 (包括瘤护士) 的合作支持,有效的自我管理得到了增强.
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