在心理社会和结构层面的交叉点上,父母对残疾人的耻辱抵抗
Alice Scavarda1, Graham Scambler2
1Department of Culture, Politics and Society, University of Torino, Italy.
Social science & medicine (1982)
|April 27, 2025
概括
项目污名化是一个新的概念,它解决了唐氏综合征和自闭症儿童家庭所面临的挑战. 这项研究探讨了个人和社会层面的耻辱抵抗策略.
科学领域:
- 医学社会学 医学社会学
- 关于残疾人的研究.
- 心理社会研究 心理学研究
背景情况:
- 传统观点将长期疾病和残疾视为个人悲剧.
- 来自残疾理论家和医学社会学家的批评挑战了这些有限的叙述.
- 这凸显了对先进的概念框架的需求.
研究的目的:
- 在长期疾病和残疾背景下定义和确定"项目耻辱"的意义.
- 探索唐氏综合症和自闭症儿童的父母如何经历和抵制耻辱感.
- 识别耻辱抵抗的心理社会和结构层面.
主要方法:
- 关于疾病/残疾叙述和批评的文学评论.
- 意大利西北部63名患有唐氏综合征和自闭症儿童的父母参与的定性研究.
- 发展理想的类型的模式的耻辱抵抗的发展.
主要成果:
- 引入并验证了"项目耻辱"的概念.
- 确定了家长用来抵制耻辱的各种心理社会和结构战略.
- 突出了残疾背景下对耻辱抵抗的被忽视的方面.
结论:
- "项目耻辱"为了解疾病和残疾提供了一个突出的概念工具.
- 耻辱抵抗是一种多方面的过程,需要在个人和结构层面上给予关注.
- 建议进行进一步的研究,以探索耻辱的抵抗力学动态.
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