一个系统模型和转型到以人为中心的数字健康的要求
Pekka Ruotsalainen1, Bernd Blobel2,3,4,5
1Faculty of Information Technology and Communication Sciences (ICT), Tampere University, Tampere, Finland.
Journal of medical Internet research
|April 28, 2025
概括
医疗保健的数字化转型,或数字健康,危及隐私和人权. 一个新的以人为中心的数字健康 (HCDH) 模式优先考虑价值观和权利,建议对未来健康数据管理进行系统更改.
科学领域:
- 医疗信息学 医疗信息学
- 生物伦理学生物伦理学
- 信息系统信息系统信息系统
背景情况:
- 数字化转型正在重塑所有行业,数字健康正在成为医疗保健中的应用.
- 由于商业驱动的目标,现有的数字健康模型有可能损害隐私,人权,尊严和自主权.
- 目前的法律和系统架构在保护数字健康生态系统中的个人权利方面存在重大缺陷.
研究的目的:
- 分析推动健康领域数字化转型的意识形态,信念和目标,以及它们对人权的影响.
- 确定当前数字健康框架的隐私,尊严和自治方面的弱点.
- 提出一种替代模式,以人为中心的数字健康 (HCDH),优先考虑人权和价值观.
主要方法:
- 进行了对560篇关于健康数字化转型的研究文章的综合文献审查.
- 分析指导意识形态,信仰和目标,评估对人权和隐私的潜在影响.
- 采用系统思维和系统建模来开发HCDH的多视图系统模型.
主要成果:
- 确定了有关隐私,尊严和人权的现行法律,法规和系统架构的重大漏洞.
- 突出了数字健康中与商业世界的意识形态 (新自由主义,私有化,数据商品化) 相关的风险.
- 开发了一个以人为中心的数字健康 (HCDH) 系统模型,使用五种观点:想法,健康数据,原则,监管和创新.
结论:
- 目前的数字健康方法对人权,隐私,尊严和自治构成重大风险.
- 以人为中心的数字健康 (HCDH) 提供了一个与人权和价值观一致的框架,支持尊严,隐私和自治.
- 未来防范HCDH需要扩大人权,采用健康数据的有限信息所有权,并制定新的法律框架.
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