将基于经验的共同设计适应到残疾研究中:共同制作CycLink共同设计研究
John Joseph Carey1,2, Alicia Spittle1,2, Christine Imms2,3
1Department of Physiotherapy, The University of Melbourne, Melbourne, Australia.
概括
适应基于经验的共同设计 (EBCD) 的共同制作为残疾人提供了适应,使包容性干预发展成为可能. 这种方法提高了研究的相关性和严格性,通过将有实践经验的个人作为共同研究人员.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 关于残疾人的研究.
- 参与式研究方法 参与式研究方法
背景情况:
- 基于经验的共同设计 (EBCD) 是开发复杂干预的参与方法.
- 当共同设计者包括残疾年轻人,家长和社区合作伙伴时,EBCD需要进行适应.
- 作为共同研究人员,让有残疾生活经验的人参与进来,可以增强EBCD.
研究的目的:
- 通过共同制作,通过将具有残疾生活经验的人作为共同研究人员参与,以适应EBCD.
- 报告"CycLink联合设计研究"的共同制作协议.
- 反思共同研究人员在适应EBCD方面的贡献.
主要方法:
- 一个六个阶段的联合制作过程指导了包括残疾人共同研究人员在内的研究小组的形成.
- 一个由共同研究人员和学术研究人员组成的指导小组领导了决策.
- 通过视频会议,电话和电子邮件进行了沟通,并通过简报文件和会议记录进行了支持.
主要成果:
- 基于经验的共同设计 (EBCD) 使用创意的在线方法进行了调整,最终形成了一个由两部分组成的"CycLink共同设计研究"协议.
- 共同研究人员影响了参与者选择,可访问性,同意过程和研究材料.
- 共同研究人员的解释性支持提高了定性发现的相关性和严谨性,尽管资源限制限制了他们参与EBCD活动的可能性.
结论:
- 联合制作成功地适应了EBCD对有不同支持需求的个人,包括代表性不足的人群,如患有童年发病残疾的年轻人.
- 障碍专业知识,指导方针和方法促进了共同设计者的参与,导致EBCD过程中的累积调整.
- 未来的研究应该优先考虑在干预设计和评估过程中早期和持续地参与共同研究人员.
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