开发一个模块化的患者报告结果和体验测量方法,以测量患者在CLL中的需求和益处 (PBI-CLL)
Beke Hester1, Julia Von Tresckow2, Minna Voigtländer3
1Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Martinistraße 52, 20246, Hamburg, Germany. b.hester@uke.de.
Journal of patient-reported outcomes
|April 29, 2025
概括
一个新的工具,慢性淋巴细胞白血病 (PBI-CLL) 的患者益处指数,评估了个体患者的需求和CLL的治疗目标. 这个工具有助于个性化为这个异质的患者群体提供护理.
科学领域:
- 在瘤学瘤学.
- 患者报告的结果
背景情况:
- 慢性淋巴细胞白血病 (CLL) 是西方国家普遍存在的成人白血病.
- 目前的临床观察和治疗启动遵循指导方针,但缺乏个性化需求评估.
- 没有现有的仪器能够捕捉到个体患者在CLL治疗选择方面的需求.
研究的目的:
- 开发和验证第一个评估慢性淋巴细胞白血病 (CLL) 患者需求和益处的仪器.
- 为了解决CLL患者治疗目标和负担的异质性.
- 支持以患者为中心的决策和CLL治疗评估.
主要方法:
- 开发了使用患者利益指数 (PBI) 方法的CLL患者利益指数 (PBI-CLL).
- 包括COSMIN指南,半结构面试 (n=28) 和CLL患者的自由文本问卷 (n=15).
- 利用定性内容分析,并通过专家共识和认知总结 (n=14) 完成了PBI-CLL.
主要成果:
- 对于CLL患者的治疗负担和目标有很大的不同,这突显了患者的异质性.
- 患者报告身体和精神负担,共同的目标是过上正常的生活,CLL和治疗的影响最小.
- 包含治疗结果,过程质量和治疗偏好的模块的PBI-CLL被患者认为是相关的,全面的和可以理解的.
结论:
- PBI-CLL是评估CLL患者需求和益处的首个工具.
- 该仪器的模块化设计能够适应患者需求和偏好的多样性.
- PBI-CLL旨在加强临床实践和研究中的以患者为中心的护理,需要进一步的心理测量验证.
相关概念视频
01:11Guidelines for Writing Outcome
When developing expected outcomes for a patient care plan, the nurse should adhere to the following recommendations:
Patient outcomes reflect the patient's response to the goal rather than what the nurse aims to achieve. Terminology should be observable and measurable to avoid the reader's interpretation. The desired outcome should be realistic and achievable in the designated care timeframe. Expected outcomes should align with adjunctive therapies. The outcome should enhance care evaluation by...
Patient outcomes reflect the patient's response to the goal rather than what the nurse aims to achieve. Terminology should be observable and measurable to avoid the reader's interpretation. The desired outcome should be realistic and achievable in the designated care timeframe. Expected outcomes should align with adjunctive therapies. The outcome should enhance care evaluation by...
01:26Methods of Documentation II: POMR
The Problem-Oriented Medical Record (POMR) revolutionized medical record-keeping by introducing a systematic approach focusing on the patient's problems rather than merely listing symptoms. Dr. Lawrence Weed's introduction of this method in the 1960s marked a significant advancement in medical documentation. The POMR framework consists of four key components: the database, problem list, plan of care, and progress notes.
01:21Methods of Documentation III: PIE
Problem-intervention-evaluation (PIE) is a systematic approach to documentation used in healthcare settings for clinical decision-making and patient care planning. It is a structured approach to organizing patient data based on problems, interventions, and evaluations. Here's a breakdown of its key features and considerations: