患者和提供者对面患者的态度 面向患者的脏 器官供应报告
Syed Ali Husain1,2, Jordan A Rubenstein1, Seshma Ramsawak3
1Division of Nephrology, Department of Medicine, Columbia University Medical Center, New York, New York, USA.
Kidney international reports
|April 30, 2025
概括
大多数患者和科提供者都想知道他们代表拒绝的脏报价. 然而,移植项目主管大多反对通知候选人这些拒绝的器官供应.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 移植手术 移植手术
- 患者倡导 患者倡导
背景情况:
- 已故捐赠者的脏供应往往被移植中心拒绝,而没有通知患者.
- 这种做法会影响等待器官供应的移植候选人.
研究的目的:
- 调查患者和医疗保健提供者对面向患者的器官供应报告的观点.
- 了解对通知移植候选人关于拒绝的报价的态度.
主要方法:
- 一项横截面调查分发给脏移植候选人,科医生和移植计划主管.
- 参与者包括来自国家脏基金会邮件列表的患者和来自美国脏移植计划的专业人士.
主要成果:
- 64%的患者希望提供器官报道;这些患者年轻,更有可能不是白人,在透析或等候名单上.
- 87%的患者认为中心应该报告所有收到的报价,62%的人喜欢在每次报价后通知.
- 73%的脏病提供者支持向候选人提供报价的信息,88%希望获得患者报价报告的副本.
- 77%的移植项目主管反对向候选人通知拒绝的报价,他们更喜欢包括拒绝原因并排除丢弃器官的报道.
结论:
- 大多数患者和科提供者倾向于分享关于拒绝脏报价的信息.
- 少数移植计划主管支持患者通知拒绝已故捐赠脏的报价.
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