关于医疗保健研究的探索性对话的反思:现在是真正改变的时候了
Joy Oghogho Watterson1, Rupinder Kaur Bajwa2, Louise Howe3
1Research and Innovation, Nottingham University Hospitals NHS Trust, PhD researcher, University of Nottingham, England.
Nurse researcher
|April 30, 2025
概括
少数民族在临床研究中代表性不足,导致健康差异. 通过联合制作和教育,让多样化的社区参与,可以提高参与度和研究相关性.
科学领域:
- 卫生公平性健康公平性
- 参加临床试验的参与.
- 社区参与研究的参与.
背景情况:
- 少数民族在临床研究中的代表性不足导致健康差异.
- 参与者的人口统计数据往往不反映目标疾病人群.
- 这种差异可能导致不平等的待遇结果.
研究的目的:
- 探索少数民族社区对临床研究的看法.
- 确定这些社区感兴趣的研究领域.
- 了解各种参与的障碍和促进者.
主要方法:
- 探索性对话和患者和公众参与 (PPI/E) 咨询.
- 与诺丁汉郡的加勒比和亚洲社区团体进行接触.
- 与研究交付人员的讨论.
主要成果:
- 社区团体需要更好地了解临床研究过程和常见的误解.
- 对积极和消极的研究经验影响的概念化.
- 确定了改善沟通和建立信任的需求.
结论:
- 研究人员,资助者和利益相关者必须积极解决参与障碍.
- 促进合作,提供研究教育和提供反至关重要.
- 让多样化的社区参与研究设计 (联合制作,代码设计,PPI) 提高了参与度和相关性.
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