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对于SMA中合症的连续造:共识为治疗的指导方针

Laurey Brown¹, Katie Hoffman¹, Chiara Corbo-Galli²

¹Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, United States.

Frontiers in neurology

|May 1, 2025

概括

为脊柱肌肉缩 (SMA) 患者制定了连续造指南,以提高灵活性和功能. 这些基于共识的建议旨在标准化对SMA患者的护理,解决合和运动范围的限制.

科学领域:

物理疗法物理治疗
康复医学康复医学康复医学
神经肌肉疾病神经肌肉疾病

背景情况:

脊柱肌缩 (SMA) 经常导致肌肉收缩,影响关节的移动性.
连续造是一种公认的干预措施,用于改善各种神经肌肉疾病中的运动范围.

研究的目的:

建立关于在SMA患者中进行连续造的最佳实践的共识.
制定指导方针,通过在SMA患者的连续造优化灵活性和功能结果.

主要方法:

一个由物理治疗师组成的国际专家小组进行了多次会议和两轮德尔菲调查.
在临床适宜性,计划考虑和遵守/可行性等296个项目上达成共识.
通过半结构面试收集了患者和护理人员的见解.

主要成果:

在所有三个领域都达成了强大的共识 (>75%的有效性指数).
观察到高的同意率:临床适当性为96.6%,计划考虑为95.0%,遵守/可行性为96.9%.
基于专家的共识和社区反,创建了一个全面的指南文件.

结论:

对于脊柱肌肉缩的患者,应实施已开发的连续造指南.
需要进一步的研究来验证这些指南在改善SMA关节收缩和功能方面的有效性.

关键词:

德尔菲技术德尔菲技术是什么?一致的共识共识.承包人就是一个合同人.连续造连续造连续造脊柱肌肉缩脊柱肌肉缩脊柱肌肉缩

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