在官方卫生统计中应用土著身份定义:使用有关胃癌癌症的链接癌症注册数据的案例研究
Nicole Satherley1, Brandon de Graaf2, Gabrielle Davie2
1iNZight Analytics Ltd, Department of Statistics, The University of Auckland.
The New Zealand medical journal
|May 1, 2025
概括
链接的行政数据可以识别毛利族的胃癌登记,提供比单独的种族更全面的观点. 这种方法对最近的数据有希望,改善了毛利人群的健康结果报告.
科学领域:
- 公共卫生 公共卫生
- 流行病学 流行病学
- 医疗信息学 医疗信息学
背景情况:
- 种族和血统是新西兰土著毛利人口的独特身份衡量标准.
- 官方的健康统计主要使用毛利族裔,因为在像新西兰癌症注册表 (NZCR) 这样的健康收集中,血统数据往往不存在.
研究的目的:
- 探索使用链接的行政数据来报告根据毛利血统的健康结果的可行性.
- 使用胃 (胃) 癌症作为本分析的案例研究.
主要方法:
- 利用综合数据基础设施 (IDI) 将人口普查 (2013年,2018年),出生和死亡记录与NZCR联系起来.
- 包括从1995年到2021年的10575例胃癌登记.
主要成果:
- 对于81.8%的胃癌病例,可以获得毛利血统信息.
- 确定了18.6%的病例是毛利族裔,而17.3%是毛利族裔.
- 在最近的注册 (2012年以后) 中,缺失下降数据率较低 (约5%).
结论:
- 根据毛利人血统以及种族分类癌症登记,对于最近的健康结果报告来说,这可能是可行的.
- 建议在使用死亡记录作为下降信息时谨慎使用,因为在生存研究等分析中可能存在偏差.
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