多发性骨髓瘤患者和护理人员的不同程度和财务负担的困难:二极质量研究
YoungJu Park1, Sooyeon Kim2, Nayeon Kim3
1Department of Clinical Research Design and Evaluation, Samsung Advanced Institute for Health Science and Technology, Sungkyunkwan University School of Medicine, Seoul, Republic of Korea.
Seminars in oncology nursing
|May 1, 2025
概括
多发性骨髓瘤 (MM) 的经济负担是复杂的,护理人员往往比患者感觉到更大的影响. 解决这一问题需要在整个疾病过程中以家庭为中心的财务咨询和支持.
科学领域:
- 在瘤学瘤学.
- 卫生经济学 卫生经济学
- 患者支持 患者支持
背景情况:
- 多发性骨髓瘤 (MM) 对患者及其护理人员造成了巨大的经济压力.
- 了解这种财务负担的多面性质对于有效的支持至关重要.
研究的目的:
- 探索MM患者和护理人员经历的直接和间接财务负担.
- 调查他们感知到的财务负担的变化和不一致.
主要方法:
- 一项涉及40个患者护理人员对的双向定性研究.
- 半结构面试和专题分析,以确定财务负担主题.
- 临床和社会人口统计数据的定量分析.
主要成果:
- 财务负担包括直接的医疗/非医疗成本和收入损失等间接成本.
- 照顾者,特别是成年儿童,会感觉到更广泛的长期财务影响.
- 超过75%的二元体在感知负担方面表现不一致,护理人员报告负担更高.
结论:
- 毫米的财务负担是动态的,患者和护理人员的观点不同.
- 护理人员面临大量的非医疗和间接成本;患者专注于即时支出.
- 整个家庭的财务咨询和护理支持对于管理财务毒性至关重要.
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