通过医疗保健转型了解年轻人的经历. 一个定性研究研究
Natwarin Janssens1, Lisa Van Wilder2, Karsten Vanden Wyngaert3
1Centre for Research and Innovation in Care (CRIC), Department of Nursing and Midwifery, Faculty of Medicine and Health Sciences, University of Antwerp, Antwerp, Belgium; Centre for Nursing and Midwifery, Department of Public Health and Primary Care, Ghent University, Ghent, Belgium.
患有慢性疾病的青少年和年轻人 (AYA) 需要个性化的医疗保健过渡支持. 他们的经历凸显了在这个关键时期,护理连续性和个性化方法的重要性.
科学领域:
- 青少年和年轻人的医学
- 慢性疾病管理 慢性疾病管理
- 医疗保健转型研究 研究 医疗保健转型研究
背景情况:
- 患有慢性疾病的青少年和年轻人 (AYA) 在从儿科到成人医疗机构的过渡期间面临护理中断,影响该人口的高达40%.
- 目前的干预措施往往侧重于复杂的,疾病特异性疾病和转移前策略,在了解有轻度慢性疾病的AYA需求方面存在差距.
研究的目的:
- 探索AYA患有轻度慢性疾病 (喘,1型糖尿病,肥胖症) 在不同过渡阶段的医疗保健过渡经验.
- 从AYA的角度来看,确定影响成功医疗保健转型的关键因素.
主要方法:
- 一项使用半结构面试和光声的定性研究,对18名15至21岁的AYA进行或经历过医疗保健转型.
- 使用NVivo软件对采访和照片数据进行主题分析,以确定反复出现的主题.
主要成果:
- 过渡是一个单独的过程,有五个关键主题:设定期望,在过渡过程中发声的愿望,信任的关键作用,以及强大的支持系统的重要性.
- 光声有效地捕捉了AYA的实践经验,补充了采访数据.
结论:
- 在各种慢性疾病中,医疗保健过渡经历是常见的,强调了护理连续性的需要.
- AYAs主张个性化过渡计划,以满足他们的特定需求,远离一种适合所有人的方法.
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