伊朗患有重症thalassemia患者关于他们的息和支持性护理需求的经验:定性内容分析
Mehrnaz Ahmadi1, Maryam Rassouli2,3, Mahin Gheibizadeh1
1Nursing Care Research Center in Chronic Diseases, School of Nursing and Midwifery, Ahvaz Jundishapur University of Medical Sciences, Ahvaz, Iran.
概括
患有β-thalassemia major (β-TM) 的患者有未满足的息和支持性护理需求. 这项研究强调了全面的心理社会和医疗保健支持的必要性,以改善他们的生活质量.
科学领域:
- 血液学 血液学 血液学
- 抚慰性护理是一种缓解性护理.
- 定性研究是指质量研究.
背景情况:
- 大型β-thalassemia (β-TM) 是一种慢性,渐进的血液疾病,需要广泛的息和支持性护理.
- 护理必须解决患者生活的身体,精神,社会和精神方面的问题.
- 确定患者需求是提供有效护理的关键第一步.
研究的目的:
- 探索被诊断为β-thalassemia major (β-TM) 的个人的息和支持性护理需求.
主要方法:
- 一项使用深度,半结构化访谈的定性研究.
- 在伊朗的一所大学医院通过有目的的抽样招募了20名β-TM参与者.
- 用传统的内容分析分析数据.
主要成果:
- 该研究确定了对β-TM患者的持续护理中普遍存在的未满足需求.
- 患者需要个性化的心理社会支持和全面的医疗干预.
- 这些发现强调了需要量身定制的支持性息性护理策略.
结论:
- 贝塔thalassemia主要患者经历了需要专门关注的重大未满足的需求.
- 个性化,心理社会和全面的医疗保健支持至关重要.
- 进一步的研究应该集中在开发护理护理计划,以支持β-TM的息护理.
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