加拿大的初级保健医疗记录行业及其数据收集和商业化实践
Sheryl Spithoff1,2, Leslie Vesely2, Brenda McPhail3
1Department of Family and Community Medicine, University of Toronto, Toronto, Ontario, Canada.
JAMA network open
|May 5, 2025
概括
加拿大初级保健数据经纪人将患者记录转化为商业资产,经常与制药业利益保持一致. 患者被排除在有关其健康数据的决策之外,引发了对隐私和价值观的担忧.
科学领域:
- 医疗信息学 医疗信息学
- 商业化健康数据的商业化
- 初级保健行业分析初级保健行业分析
背景情况:
- 在全球范围内,大量的健康数据被转移给商业数据经纪人.
- 有限的实证研究存在于健康数据行业的功能和患者影响.
研究的目的:
- 分析加拿大的初级保健医疗记录行业.
- 检查该行业内的数据收集和商业化实践.
主要方法:
- 使用情境分析的定性研究,一个有基础的理论方法.
- 分析了19个半结构面试和22份公开的文件.
- 在2022年5月至2024年5月期间收集和分析的数据.
主要成果:
- 加拿大初级保健医疗记录行业涉及数据经纪人,医生,诊所连锁店和制药公司之间的复杂关系.
- 一个新兴的垂直集成模型集中控制临床实践.
- 工业活动受到制药利益的影响,患者被排除在决策之外.
结论:
- 加拿大初级保健医疗记录行业的实体从将患者记录转换为商业资产中获利.
- 工业实践与制药公司的利益保持一致,可能会忽视患者的价值观.
- 患者被排除在决策之外是一个重大问题.
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