在患有乳腺癌的年轻成年人中使用编程电子通信的参与
Kate E Dibble1,2,3, Kimia Sorouri1,4, Sarah Desmarais1,2
1Department of Medical Oncology, Dana-Farber Cancer Institute, Boston, MA, USA.
概括
年轻的乳腺癌患者积极参与电子通信,对同行支持,生活方式主题和生育信息表现出高度兴趣. 这凸显了需要量身定制的资源来应对他们独特的生活挑战.
科学领域:
- 在瘤学瘤学.
- 卫生沟通健康沟通
- 患者参与 患者参与
背景情况:
- 被诊断为乳腺癌的年轻人代表了一个独特的患者群体,有着独特的需求.
- 有效的沟通策略对于让这一群体参与临床规划和资源开发至关重要.
- 电子通讯 (e-communications) 提供了一个可扩展的平台,可以接触到年轻的乳腺癌患者.
研究的目的:
- 评估乳腺癌患者年轻成年人对电子通信的参与度和主题兴趣.
- 为这个患者群体提供临床规划,资源创造和沟通策略的信息.
主要方法:
- 利用艾玛,一个符合HIPAA的平台,在Dana-Farber癌症研究所的"年轻和强壮" (Y&S) 计划中进行电子通信.
- 分析了2020年9月至2023年4月的每月和独立电子通信的收件人参与数据 (打开率,点击率).
- 电子通讯包括临床和研究新闻,资源和活动 (例如,支持小组,网络研讨会).
主要成果:
- 平均月度分布达到3915名年轻患者,开放率在31个月内从19.3%增加到53.0%.
- 在同行/社会工作支持会议 (15%),健康生活方式/整合疗法 (15%) 和会议 (13%) 中,点击率最高.
- 生育和育儿主题吸引了大量的兴趣,其中包括近50%的点击在一个时期和20%的另一个时期.
结论:
- 年轻的乳腺癌患者表现出强烈的参与电子通信,提供同行互动和专家信息.
- 显然,人们对解决这一群体面临的特定生活方式和生殖挑战的信息有明显的需求.
- 编程式电子通讯有效地将年轻的乳腺癌幸存者与重要资源和支持联系起来.
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