状细胞故事俱乐部:实施基于诊所的识字促进计划
Julia E LaMotte1,2, Jillian R Bouck1,3, Kristen Pogue1
1Indiana University School of Medicine, Indianapolis, Indiana, USA.
Pediatric blood & cancer
|May 6, 2025
概括
状细胞故事俱乐部 (SCSC) 计划通过分发书籍,成功地促进了状细胞疾病 (SCD) 的儿童的识字. 该计划增强了阅读的信心和乐趣,大多数家庭都推它.
科学领域:
- 儿科血液学 儿科血液学
- 儿童发展 儿童发展
- 识字计划 识字计划
背景情况:
- 促进识字对于儿童的发展至关重要,特别是对于由于神经认知因素导致的状细胞疾病 (SCD) 的儿童.
- 书籍所有权计划在儿科医疗保健机构中提出了一种新的方法.
- 这项研究评估了儿科子专科诊所的一项识字倡议.
研究的目的:
- 评估一项促进识字计划在门诊儿科状细胞病诊所的实施和影响.
- 评估状细胞故事俱乐部 (SCSC) 在培养SCD儿科患者的识字技能和参与方面的有效性.
- 了解家庭对SCSC计划的看法和建议.
主要方法:
- 状细胞故事俱乐部 (SCSC) 在2021年3月至2023年12月期间向386名患者 (年龄为0-22岁) 分发了1711本书籍.
- 心理社会团队成员提供书籍,家庭提供家庭识字和反调查.
- 参与是自愿的,无论调查是否完成,提供书籍.
主要成果:
- 护理人员报告说,在所有年龄组 (0-22岁) 中,阅读频率和阅读乐趣增加.
- 阅读信心 (86.8%的学龄儿童) 和阅读频率的显著改善.
- 几乎所有家庭 (90.1%) 发现SCSC计划很有用,并会推它.
结论:
- 患有SCD的患者因神经认知效应和教育差异而面临独特的学习风险.
- 促进识字对于儿童的发展至关重要,专科诊所可以有效地解决这个问题.
- 该SCSC计划展示了一个成功的模式,将扫盲支持整合到慢性疾病护理中.
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