澳大利亚受鼻病影响的家庭的心理社会支持:一种定性研究
Amanda J Osborn1, Rachel M Roberts1, Diana S Dorstyn1
1School of Psychology, University of Adelaide, Adelaide, Australia.
概括
澳大利亚的父母报告说,在整个临床过程中,他们的孩子缺乏心理支持. 他们主张将综合心理援助作为以家庭为中心的护理的标准部分.
科学领域:
- 儿科健康 儿科健康
- 心理社会支持 心理社会支持
- 头骨面部疾病 头骨面部疾病
背景情况:
- 患有面状况的家庭报告了各种各样的心理社会支持经历.
- 澳大利亚父母面临骨突症的经历并没有得到充分的记录.
研究的目的:
- 探索澳大利亚父母的心理社会经验和需求,他们的孩子有关节缩症.
- 为了确定澳大利亚医疗保健系统对这些家庭的心理支持的差距.
主要方法:
- 使用与家长进行的21次在线叙事采访进行的定性研究.
- 对转录的采访数据进行反思性的专题分析.
主要成果:
- 出现了四个主要主题:沟通和对临床护理的信任,卫生系统的挑战,家庭支持网络和缺乏心理支持.
- 家长们强调了医疗系统导航和通信方面的困难.
- 一个重要的发现是缺乏易于获得的心理支持.
结论:
- 澳大利亚受骨突症影响的家庭经历了心理社会支持的赤字.
- 父母强烈希望心理援助和相关支持融入标准的,以家庭为中心的护理.
- 这项研究强调了对面状况加强心理社会护理途径的需要.
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