在帕金森病中接受治疗和对咳技能培训的满意度:混合方法研究
Jordanna S Sevitz1, Nicole Rogus-Pulia2,3, Georgia A Malandraki4
1Laboratory for the Study of Upper Airway Dysfunction, Department of Biobehavioral Sciences, Teachers College, Columbia University, New York, NY.
概括
咳技能培训 (CST) 是帕金森病 (pwPD) 患者未充分利用的一种康复. 这项研究发现CST是可以接受和令人满意的,并提出了个性化的适应建议,以改善吸收和以患者为中心的护理.
科学领域:
- 神经学 神经学
- 康复科学 康复科学 康复科学
- 语音语言病理学 语言病理学
背景情况:
- 康复可以改善患有帕金森病 (pwPD) 的人的呼吸道保护.
- 包括咳技能培训 (CST) 在内的康复疗法未得到充分利用.
- 了解患者的体验对于改善像CST这样的治疗方法的采用至关重要.
研究的目的:
- 在患有帕金森病 (pwPD) 的患者中定义咳技能培训 (CST) 的治疗可接受性和满意度.
主要方法:
- 采用混合方法的方法使用了13 pwPD.
- 来自问卷的定量数据和来自半结构面试的定性数据被整合在一起.
- 数据收集和分析的指导是患者安全系统工程倡议框架.
主要成果:
- 系统可用性表现出足够的可接受性 (系统可用性量表中位数为70/100).
- 大多数参与者 (61.5%) 对CST感到满意或非常满意.
- 满意度的关键主题包括治疗相关性,患者意识和控制,技能获取和技能转移.
结论:
- 对CST设备,培训目标和反的个性化调整可以提高患者的体验.
- 教育和个性化的目标设定可以提高治疗的相关性和感知到的好处.
- 患者的观点可以为以人为中心的CST实施提供信息,以改善治疗吸收率.
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