"我们需要让"狗"变得性感",这是一项定性研究,探讨了患有炎症性肠病的青少年的治疗坚持程度
Cassandra Screti1, Lou Atkinson2, Rachel Shaw1
1Institute of Health & Neurodevelopment, Aston University, Birmingham, UK.
Health psychology and behavioral medicine
|May 8, 2025
概括
患有炎症性肠病 (IBD) 的青少年经常感到局限和耻辱,这会影响他们的治疗坚持. 开发支持性环境和定制干预措施可以改善这些年轻患者的自我管理.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 青少年健康 青少年健康
- 慢性疾病管理 慢性疾病管理
背景情况:
- 患有炎症性肠病 (IBD) 的青少年面临着将自我管理与发展里程碑相结合的独特挑战.
- 现有的针对IBD青少年治疗坚持治疗的干预措施有限.
研究的目的:
- 探索IBD青少年的生活经验和支持需求,以提高治疗坚持.
- 确定障碍和有效的策略,以改善青少年IBD患者的药物坚持.
主要方法:
- 对青少年 (n=12),家长 (n=13) 和医疗保健专业人员 (n=8) 进行了33次半结构面试.
- 用青少年和家长的创意绘制任务来优先考虑坚持挑战和干预需求.
主要成果:
- 确定了三个核心主题:追求正常,承担IBD管理的责任,以及需要支持性环境.
- 青少年报告IBD管理导致差异感和耻辱感,影响他们对"正常"生活的看法.
- 通过综合发现和创意任务,产生了七个干预重点.
结论:
- 患有IBD的青少年的坚持行为是复杂的,受感知和日常生活挑战的影响.
- 确定了坚持治疗的障碍,为为这一群体开发有针对性和有效的治疗坚持治疗干预措施提供了基础.
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