对脂肪肝疾病的耻辱评价
Yasser Fouad1, Alaa M Mostafa1, Ziyan Pan2
1Department of Gastroenterology, Hepatology and Endemic Medicine, Faculty of Medicine, Minia University, Minia, Egypt.
概括
大多数患者不认为脂肪性肝病中的"脂肪"一词是污名化的. 人们对这种疾病及其后果的认识仍然很低,这表明,为了减少污名,建议将名称改为MASLD可能不必要.
科学领域:
- 肝病学 肝病学是一种肝病学.
- 代谢障碍 代谢障碍 代谢障碍
- 患者的耻辱研究研究.
背景情况:
- 德尔菲声明建议将代谢功能障碍相关的脂肪肝病 (MAFLD) 改名为代谢功能障碍相关的脂肪性肝病 (MASLD).
- 这一变化旨在用"稳定性"取代"脂肪",以减少感知到的耻辱感.
- 这项研究调查了患者对耻辱的看法和对脂肪肝疾病术语的认识.
研究的目的:
- 评估患者对脂肪肝疾病后果的认识.
- 评估患者对"脂肪"术语在脂肪肝病命名中的污名性质的意见.
- 根据对耻辱的担忧,确定拟议更改名称为MASLD是否合理.
主要方法:
- 这是一项涉及222名脂肪肝患者的横截面研究.
- 使用了半结构面试和书面问卷.
- 评估患者对疾病进展,并发病,诊断和治疗的知识.
主要成果:
- 对于肝硬化 (37.8%) 和肝细胞癌 (16.7%) 等脂肪肝疾病并发症的认识较低.
- 大多数患者 (79.7%) 不认为"脂肪"这个词是污名化的,尽管"酒精"被认为是污名化的 (85.1%).
- 严重缺乏关于诊断 (71.9%) 和治疗 (81.1%) 的知识,有强烈的学习更多的愿望 (65.8%).
结论:
- 在与代谢功能障碍相关的脂肪肝疾病中,术语"脂肪"并不会被患者视为耻辱.
- 如果减少耻辱是主要目标,建议将名称更改为MASLD是不合理的.
- 迫切需要提高患者对脂肪肝疾病的认识和教育.
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